Struggling Family To Lose Benefits For Their Disabled Son – Because Youngster Is ‘Too Ill’
disabled:The family of a heavily disabled boy are having essential benefits scrapped by heartless benefits bosses – because he’s too ill.Seven-year-old Dylan Kirsopp’s condition leaves him having to be fed through a drip, while he also has cerebral palsy and epilepsy.However, his family have now been told that his disability benefits will be axed because he is too poorly to qualify, leaving mum Mandy, 35, and 37-year-old dad John furious.
The family have even been told they will lose Dylan’s special wheelchair-adapted car as the battling boy is not at home in Gateshead, Tyne and Wear, but in hospital.Dylan was born prematurely at 23 weeks alongside his twin brother Murray.He weighed just over 1lb, and faced a tough struggle to survive.His brother made a good recovery, and while being autistic he is otherwise healthy.
However young Dylan has been diagnosed with intestinal pseudo-obstruction, meaning he cannot eat food and must be fed using a drip.His mum was even forced to quit her job in customer services to become a round-the-clock carer for Dylan.
She has been at her son’s bedside six days a week, with dad John stepping in to give her a one-night reprieve each week.However, the Department For Work and Pensions states in its rules that if a child is in hospital care for a period of 12 weeks or longer, their Disability Living Allowance will be axed.
Mandy’s Carer’s Allowance is also going to be cut, because the Department For Work and Pensions claim that it is the hospital and not the carer providing medical assistance for Dylan.Mandy added: “I think it’s really, really unfair. When you’re in the hospital 24 hours a day with your child, you are giving them as much if not more care than you would if you were at home.
“Yes, the nurses are here to provide a medical service, but they’re not the ones who are sitting up all night cuddling him when he’s unwell.”The family estimate that once both Dylan’s Disability Living Allowance and the Carer’s Allowance are scrapped, half of the family’s income will be lost, with them being forced to solely rely on dad John’s part-time warehouse worker wage.
he struggling parents will also be left with no means of transport once Dylan’s wheelchair-adapted car is taken from them.She said there would be no one left to look after him, and blasted the DWP’s stance as “absolutely ridiculous”.
Mandy and John sold their family home after their children’s birth because they could get better disabled access in a council home.But now they face another challenge, as Dylan is moved 300 miles away for specialist treatment from Gateshead to Great Ormond Street Hospital in London.
The loss of the benefits will be crippling for the family, says Mandy, and would leave them relying on other people for help.The family have had support form disability charity Contact a Family.