Spina bifida: To my younger self,
First of all, I want to tell you I’m proud of you — both of who you are now and of the person we’ve become. You are capable of so much more than you give yourself credit for, and the confidence we have within us now is something I wish we’d learned earlier.I know accepting the fact that you have spina bifida is difficult right now. You only seem to notice your differences, and you see them as weaknesses. But I want to tell you that your disability isn’t a limit — right now, in this moment, it’s the thing giving you the wings to fly to places you never thought you’d get to go. You were given a more difficult life, as you’re well aware of by now, but that life has given you somuch strength. I’m just now realizing how amazingly tough we were at the age you are, and how tough we still are.
I also want to tell you that no matter what you convince yourself to believe, and no matter how much guilt you feel when you think you’re not handling your life well enough, you’re handling it the best way you can.The journey toward accepting and loving your disability will start with accepting one simple fact: You wouldn’t be the same person you are now had you not been born with a disability. And that would be a shame, because honestly, I love and am proud of the person I am.
Living with a disability Spina Bifida has taught me how to be a person who says, “Oh, you don’t think I can do this? Watch me do it — and do it very well!” That mindset is something many people try to achieve — we were born with it.Use your disability to help yourself when it can, because you might as well make the best out of a situation that isn’t ideal. Your disability can bring you so much opportunity — in fact, your dreams are coming true right this second, but that doesn’t mean we’re done dreaming.I’m not going to tell you to try harder in school, because you aren’t going to listen to that anyway, but I want to tell you this — keep writing. You have an overwhelming feeling that this is what you’re meant to do, and you feel that way because it is. Please realize that sooner. Plus you have even more to look forward to, like meeting friends who really “get you.” You’ll feel loved beyond all comprehension.